The Tools for Life: Data Sharing for Public Health project (2019-21) engaged the public in a conversation about the benefits and risks of patient data sharing for public health.
This short animated video (6m 25s) provides a brief introduction to some of its key outcomes.
while members of the public are willing to share their patient data for the benefit of public health, their willingness to do so is subject to a number of ethical and governance principles being met.
https://www.sheffield.ac.uk/is/research/groups/ikim/tools-lifeA key project in the Information Knowledge and Innovation Management research group.
The Tools for Life project is engaging patients and the public in a dialogue about the benefits and risks of sharing their personal data for purposes beyond their direct care.
By engaging in this dialogue our aim is to enable patients and the public to respond in a more informed way to the benefits and risks that the sharing and linking of personal data can bring to improving the public’s health.